Oh
this is the most endless day of my life! We rise at 5 AM, taking an overpriced
taxi to the airport. We sit and wait. Isn’t that what flying is all about?
Hurry up and wait. We board the plane back to Frankfurt, packed in like sardines.
I have a nice conversation with the gentleman next to me, a German national
inspecting pet food factories the world over. Considering how long ago I
learned German, I’m happy that I can generally explain in German anything he
misses in English or Spanish.
Landing
in Frankfurt, an aisle chair arrives to take me off the plane. Bird vociferously
greets me on the jetway and I transfer. We have our own personal Lufthansa
minder. She takes us through the endless Frankfurt airport to our next plane.
Frankfurt has set up its airport so that you roll through every duty-free
option existing on the planet. My poor body battles the assault of foul-smelling,
headache-inducing, overwhelming perfume.
But
hurry up and wait again! The plane will board late. Ugh! Keith looks for food,
eventually settling on a Big Mac. The sandwich looks and smells as disgusting
as I recall McDonalds’ food being. I eat the pickles.
Why
when I fly, do I find the world filled with other handicapped people or just
people who claim they can’t walk? Obviously, they fail to comprehend my great
importance. Ha! Seriously, folks, walk as long as you can. Otherwise, you just
slow things down for everyone, including yourself. Given Lufthansa’s prices, I
fully understand the desire to be pampered.
Lufthansa
first tries to take Bird, asking me for my rental papers. I respond, “Nein!
Mein Rollstuhl!” Acquiescing to my retaining Bird, Lufthansa then pushes
us through a door onto the jetway. Other cripples have crowded the space, each
pushing to be first on the plane. For the life of me, I will never understand
why a person wants to be first to board. You will be sitting in a very confined
space for hours, especially if you cross an ocean! None of the other cripples
need an aisle chair. By process of elimination, I am eternally first on and
last off.
I
greet the plane employees with my severely limited German. In their amazed excitement,
they respond and I understand! I explain that I learned a bit of German 40
years ago in high school. As German is now seldom taught in public schools, the
employees respond that for me, it must be like a mother tongue. They are over
kind. Mein Deutsch ist sehr schrecklich!
Loaded
via aisle chair onto the plane again, we watch the hordes of people board. Two
older perfume-sodden women approach our larger seats, saying “We have both ordered
aisle seats! How could we possibly be next to them?” I fervently hope that they
move into the aisle seats, one away from us. (Our larger seats cost $100 extra
each. On the way TO Frankfurt, the only unsold seat on the entire plane lie
next to us. YEAH!) A long conversation between the women and Lufthansa employees
ensues. The result? The women, too twitterpated to correctly read their
tickets, plop down next to us.
Shit!
The
closer perfume-intoxicated woman notices that I never stand up. Inquiring minds
being what they are, she asks me why. I admit to being crippled.
Mistake!
She then begins telling me how to live my life. Obviously, a woman who can’t
find her clearly marked seat on a 747 knows more about living with MS than I
do. And I am looking forward to ten hours of this?! Lord help me!!!
Upon
being subjected to incompetent, unwanted advice, I do have choices:
1.
Ambien
2.
Telling
people to shut the fuck up
3.
Changing
the subject
4.
Doing
my very best to ignore them
5.
Explaining
and justifying my extremely personal medical choices
Well,
I’m out of Ambien, if I tell her to shut up (which in retrospect I should have
done) I have ten hours of ice next to me. I take the passive aggressive way
out, repeatedly change the subject and then bury myself in Lufthansa’s personal
TV.
Lufthansa
gives each person their own personal TV set where you can choose movies, TV
shows or other things. But you can only watch TV so long.
Should
I defend and explain my personal medical decisions? My life and choices remain my
own, absolutely none of anyone else's business.
So,
I end up absorbing this woman’s ignorant advice, idiotic drivel and poor
behavior for ten hours, swallowing my smoldering anger. She assails me with
rude, unrequested advice, regaling me with tales of the inherently obvious.
Climbing into a wheelchair eliminates fifty IQ points, so anyone knows more
about being a cripple than I do. I keep the peace as I’ve been taught to do, no
matter the cost to myself.
I
am trapped, lacking viable options. I pray for the flight to end. What do I
want? Just for people to keep their mouths shut when they know nothing about progressive
MS. For other subjects, I don’t ask for competence. After all, I live in a
country that elected a pervert as president.
At
last Denver! Not a moment too soon for my fleeting sanity! We arrive in the late
afternoon here. Lufthansa provides another aisle chair, then shoos us through
customs. We end up by the luggage. Spaced out, we finally realize that the entire
planeful of people has passed us when we note the German flight crew walking
by. Bear rouses himself, shaking off his weariness. He gathers our suitcases
but discovers that the airline has left Tinky the walker upstairs, despite
promises to the contrary. We contact the baggage people. After half an hour or
so the walker appears. We leave DIA 2 ½ hours after we landed.
Walking
out, we find a taxi. We don’t need a special taxi because the huge America taxi
easily accommodates all our junk.
Our
Spain adventure and the Trips for Crips blog ends here. I now offer an epilogue
before I return to writing my memoir.
In
the time since, the multiple sclerosis has, as ever, turned my body into a
walking time bomb. “Tick, tick, tick,” I hear even in my sleep.
I spent the winter of
2015-2016 sick with one illness after another. The coup de grace for travel came
in April 2016 when I fell getting into my wheelchair, breaking my wrist. I
began to envy the dead, never a good thing. With progressive MS, if you don’t
use something daily, you lose that function. The wrist healed, but I lost the
ability to transfer in and out of my wheelchair on to minor things like the bed
or the toilet.
So I have lost most autonomy
and have unfortunately reached the point where I require assistance every hour
or so. My wonderful fellow animals care for me. But I know everyone needs a
break. We have hired an aide who comes on Tuesdays (at great expense). Paul
cares for me on Saturdays. Keith gets two days off to golf or ski.
It has taken me quite a
while, but I have again adapted to this reduced mobility. I am, after all,
still alive.
MS has forced us to add a
large handicap-accessible bathroom/bedroom in the former attached garage. The
beautiful room has consumed our remaining wealth. The minute you say disabled,
the same as if you say wedding, the price skyrockets. The number of people
doing their damnedest to suck the lifeblood out of cripples truly amazes me.
Probably all voted for Trump. (No, I’m NOT happy about November’s election
results. The election was good for pot, legalized suicide and Trump.
Coincidence?)
Before everything fell apart,
I very much wanted to visit the Hermitage (St. Petersburg), the last museum on
my bucket list. Fate had other things in store for me. MS has stolen my
remaining health and wealth. Currently, we have no travel plans. But the boys
have become accustomed to transferring me on and off of the toilet. So you
never know!
Previously, we traveled
inexpensively using Airbnb. For $90 a
night, you generally rent someone’s flat complete with a kitchen and washing
machine. My transfer and walking inabilities have closed this to us. (Our Spain
vacation cost us $9k for 3 people taking 3 leisurely weeks in Spain, including
airfare) I HATE bad motels and food, but we may have been reduced to that. And
I am disgusted with the massive expense of traveling in the States. Obviously,
I must get over this before we contemplate future travel.
A year later, Spain appears
as a glowing gracious dream, slowly fading, like the last sunbeam dancing
across the water just before the sun disappears below the edge of the ocean.